Off the Beaten Path
I’m an experienced mom. I’ve been one for twenty-two years. I’m also experienced at parenting children with invisible disabilities. I’ve been that for twenty-two years as well. But most of the time I’m still floundering, wondering what to do, how to cope, and how to help my children move forward.
Mental illness and autism are similar in that they both remove a person from the expected path of life—high school, college, job, marriage, babies—and into something completely different. And they do this behind the scenes. To look at my children, it’s not apparent why they are struggling. They look fine.
But sometimes they just can’t do the thing.
Every time we come to a roadblock, a place where one of my children balks at progressing, I feel panicked. I don’t know what to do. I don’t know how to help. Do I let them play video games around the clock because it helps them feel better? Do I force them to go outside and play, knowing that they’ll come back in 20 minutes with a severe headache because it was more than they could do? Do I seek answers in medication? Therapy? Prayer? Special diets? Vitamins?
The truth is, there are not always answers. Whatever solution I come up with is not going to be the right one because I can’t fix this. I can’t. I can’t make my kids not be autistic. I can’t make them not be depressed. I can’t make them free from anxiety. I can’t make them think clearly when their minds just can’t do it.
Can medication help? Of course. Can therapy help? Certainly. And so can prayer, special diets, vitamins, and a host of other solutions that people apply to make things better. All of those things have been helpful.
So why do I still feel frantic every time one of my children goes off the rails?
1) Because I long for them to “do the thing”—I want their lives to follow that expected pattern. I want them to grow up and happily leave home for jobs and families of their own. I don’t want them to be on this alternate path where everything is strange and unknown to me.
2) Because I think I need to fix everything—Taking care of my children is my job. When there are things I can’t fix, I’ve obviously failed.
3) Because I hate to see them hurting—Mental illness is more than just a nontraditional path through life. It’s a nontraditional path through a bed of nails while drowning in an acid sea. Embracing their differences is hard to do when those differences are torture for my kids.
So what can I do? How can I approach my children’s disabilities without losing my mind?
I can respond to each of the above points in turn. Stop expecting them to “do the thing.” Stop trying to fix everything. Love them in the midst of their pain instead of panicking about it. But the bottom line is that I need to trust God. He is the One who allowed these disabilities and illnesses to beset my children, just as he allowed Paul a thorn in the flesh and allowed Job to lose his livelihood and family. He is their Creator, and He has a right to do with us all as He pleases. He is also our Redeemer, the lover of our souls, and our Father who gave His only Son to buy us back from Hell.
Shouldn’t that be enough?
Are you a Christian parenting an individual with mental illness? Join the Eleventh Willow private Facebook support group to meet other parents who understand. Let’s help each other walk this path.
Photo by Ian Taylor on Unsplash